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What should I do if I'm worried about my memory?
If you are concerned about your memory, it is best to visit your doctor. He or she will be able to discuss any issues with you and assess your memory and reasoning skills. The symptoms of Alzheimer's disease can be similar to other conditions, so it's important to see a doctor in order to start any treatment that may be required.
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What does it mean to be 'referred'?
If your GP feels there is a need for further assessment or investigation, you will usually be 'referred' to a consultant psychiatrist who is a specialist in memory problems. He or she is highly experienced in the diagnosis and, if required, treatment of Alzheimer's disease. The consultant is supported by a dementia specialist nurse who will also be able to help advise on any additional help you may need.
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Can Alzheimer's disease be cured?
There is currently no cure for Alzheimer's disease. However, through a combination of both treatment and lifestyle changes like diet, many people find that the development of symptoms can be slowed. This allows them to live a 'normal' life for as long as possible.
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Why did I develop Alzheimer's disease?
People who have recently been diagnosed with Alzheimer's disease often ask the question 'why me?' The exact reason people get Alzheimer's disease is still unknown, but we know that the older a person is, the more likely they are to get it. It is often the case that a number of factors combine to cause individuals to develop Alzheimer's disease.
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How quickly will my Alzheimer's disease progress?
Everybody is different so it is very difficult to know how quickly your condition will progress. Some people notice a decline in their memory and functioning ability within a few months, others over the course of several years. It is therefore important to get an accurate diagnosis and start treatment as quickly as possible. Living as healthily as possible, for example by watching your diet, will help you to live a 'normal' life for as long as possible.
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How do I tell my friends and family?
It is up to you how and when you tell your family and friends. Some people tell everyone straight away and some people choose to only tell those closest to them at first and let others know over time. If you've had symptoms for a while or have been acting out of character, it can be a relief for you and your family to have an explanation. However, the diagnosis can still come as a big shock and your family and friends may react in different ways to your news and may need time to take it all in.
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How will my feelings change over time?
In the immediate days and weeks after being diagnosed your emotions are likely to be very up and down. It's likely you'll feel unhappy or angry initially, but it's important to try and carry on as 'normal' for as long as possible. Keeping an active mind by maintaining interests and hobbies can have a huge positive impact on your overall wellbeing.
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How do I tell others how I feel?
Good communication is essential, but everyone likes to communicate in different ways. These ideas might help you to communicate your feelings more clearly:
Make time to discuss your feelings when you and the person you're talking to aren't distracted or already tired or emotional
It might help to make a note of the things you want to talk about first so that you can order your thoughts
Remember that the person you're talking to might find it hard to hear what you have to say and may need time to think it over
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How do I get someone to step into my shoes?
Unfortunately it is impossible to 'make' someone understand how you feel and what you are experiencing. However you can help them to understand better by using the communication tips above. You can also direct them to some of the Alzheimer's information on this website, which will give them a better insight into the disease and the symptoms you experience.
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What should I plan for?
Being diagnosed with Alzheimer's disease raises lots of questions about the future. You can find a lot of information about planning for the future on the Alzheimer's Society website at http://www.alzheimers.org.uk/
Some of the things you might want to think about include:
Sorting out your finances, including looking into benefits you may be entitled to; Giving someone 'power of attorney' so they can manage your legal affairs; Writing some advanced decisions or directives about how you would like to be cared for.