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Coping with your diagnosis

Coping with your
diagnosis

What is Diabetes?

What is diabetes?

Diabetes Type 1 and 2 - what's the difference?

Diabetes Type 1 and 2 - whats the difference?

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Advice for families/carers

  • Make sure you know how your relative/friend feels and behaves if they’re having a hypo
  • Keep something sugary at hand in case your relative or friend starts to have a hypo
  • Some people with diabetes are prescribed a sugary gel (called GlucoGel) and/ or an injection (called Glucogen). If your friend or relative has, ask their doctor or nurse how and when to use it.

Downloadable Hypo factsheet.

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Carer’s corner

Caring for someone with diabetes can be tough, particularly if they have other medical or emotional problems as well as their diabetes. It can be difficult to accept that a friend or loved one has a life-long condition and the fact that they have diabetes may change your relationship with them. Perhaps you worry about the consequences of the condition, perhaps you feel they aren’t managing it properly, perhaps you feel you need to remind them about taking their medication or eating properly. All these feelings are quite normal and understandable.  Adapting to and managing diabetes can place a strain on relationships. Diabetes can fit into your lifestyle, but you may need help and support with this. So it’s important that you get some support for yourself – that way you’ll be able to support your relative or friend better.

Talking through your worries can help, and Diabetes UK’s Careline is open to anyone affected by diabetes. It’s available Monday – Friday, 9 – 5 on 0845 120 2960.

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Getting support for you

According to Carers UK, there are about six million people providing care around the UK at the moment. That equates to one in eight adults, many of whom are ordinary people like you. Some have no choice, as they can't afford to pay someone else to provide the care, while many others feel that it is important to look after their loved one or friend. 

If you are caring for someone, you will be glad to know that the Government has committed itself to providing support for people like you. Not only should you be able to get support from the NHS (depending on the condition of the person you are caring for), but you may also be able to claim a special carer's allowance. It may not be much, but every little helps.

Financial support

If you spend 35 hours or more each week providing care to a seriously ill or disabled person and are not earning more than £100 a week (2010 – 2011 rate), then you may be able to claim Carer's Allowance (CA), a special social security benefit for full-time carers. In order to claim you must be over the age of 16 and not in full time education.

To find out if you qualify, contact the CA Unit on 0845 608 4321between 8.30am and 5pm Monday to Thursday and between 8.30am and 4.30pm on Fridays. If your first language is not English, ask for information about the interpreter service. Alternatively, email cau.customer-services@dwp.gsi.gov.uk or apply online via the website at Caring for someone.

Coping with difficulties

Caring for someone with a chronic health condition is never easy and there may be times when it’s especially tough. Here's some advice which may help:

  • If you are feeling stressed, weepy or exhausted, it's a good idea to take a break to recharge your batteries. If the person you are caring for is seriously ill and needs ongoing care – and there's no one else who can take over your responsibilities for a few hours or few days – your local Social Services may be able to help. If you are depressed or suffering from insomnia, it is worth contacting your doctor.
  • If you’re chatting to someone don't feel guilty if you find yourself moaning about your situation. It's really important to express your feelings and not bottle them up. Sharing your frustrations with someone may make you feel better. You may find it helpful to become a member of a charity or patient organisation that specialises in the condition your loved one or friend has been diagnosed with.
  • If there's a time of day you know you feel low, try to give yourself a treat. Making a special time to sit down to watch your favourite soap with a cup of tea or doing something else just for you, can make a surprising difference.
  • If you have a medical emergency, it is good to have any relevant information and paperwork somewhere you can access easily in a rush. It’s also a good idea to keep a list of emergency numbers next to your phone, just in case.
  • If the person you’re caring for becomes depressed, emotionally distressed or suicidal, they may need urgent attention. Get them to see their GP as soon as you can. And remember, you or the person you're caring for can always talk to someone 24 hours a day by calling Samaritans on 08457 909090. Alternatively, there are charities and organisations that enable people with specific conditions to get together and support each other. Ask at your GP surgery for details of these.
  • If you become ill and are unable to provide essential care, then your local Social Services should be able to provide a number of helpful services, such as day centres, respite care, home help and meals-on-wheels. These may only be available to people who are seriously ill and cannot care for themselves.

See Diabetes UK for details of the charity for people with diabetes, Email:info@diabetes.org.uk

Diabetes UK Careline

Call: 0845 120 2960, Monday–Friday, 9am–5pm.

Email: careline@diabetes.org.uk

Or if you are in Scotland: carelinescotland@diabetes.org.uk

See Carers UK – the organisation led by carers for carers – for more information www.carersuk.org

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